“.....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea (UNREST).

ME/CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome) is a serious, chronic, complex, and multisystem disease that dramatically limits the activities of affected patients. The core symptom of ME/CFS is profound and disabling fatigue, which almost always affects both physical and mental functioning. The fatigue and other symptoms are not caused by ongoing excessive exertion and are not relieved by rest. There are also a host of other fluctuating and ongoing symptoms including (but not limited to!) headaches, muscle aches, pain, dizziness (orthostatic intolerance), nausea, neurological symptoms, problems with temperature regulation, abnormal and unrefreshing sleep, sensitivity to light & sound (sometimes extreme) and flu-like symptoms, of varying degrees.                       ME/CFS affects around 200,000 people in the UK, including children, there is no effective treatment or cure and Government funding for research remains appalingly low. 

Our aim is to raise awareness, and raise funds for research into this debilitating and life changing long-term condition, and stand up for people with ME who have largely been forgotten by the medical establishment.

For this year's 'Walk for ME', a group walk is not possible, so on May 16th 2021 (to coincide with ME Awareness week) we will each be doing our own individual runs, walks, swims and cycles, from 5k, 10k, half marathon to full marathon distances. We will be setting off from our own houses wherever we are in the country, or the world - mostly in the UK but also France, Spain and the Turks and Caicos Islands. Our team started off with just 3 people and has grown to an incredible 46 people taking part! 

12 of us are mums of children and young people with ME/CFS, and the rest of the team are wonderful family and friends supporting us. We are: Claire, Jo, Dom, Niki, Rachel, Katie, Anya, Robyn, Bridget, Michael, Emma, Caroline, Charlotte, Emma, Janet, Sarah, Rachel, Susan, Flic, Mel, Jolene, Riss, Christine, Vicky, Jo, Beccy & Rachel, Tracey & Darcy, Flora & Chris, Kira, Izy & Seth, Leonie & Lesley, Harry & Bronwyn, Tanya, Aline, Marie, Suzi and her fantastic team of carers: Kaca, Jo, Alice and Becca. 💙💜

We are running, walking, swimming and cycling for all of our incredible and inspiring children & young people who battle this devastating illness every day, and for everyone living with ME/CFS.

Thank you so much for visiting our page, your support would mean the absolute world. xxx

'ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus. We've awarded 48 grants since 2000 and invested over £1.5million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.'