Story
This handsome young man is my friend's son Lewis.
Here is his story:
My name is Lewis Herbert and I was born in 2002. I was diagnosed with West Syndrome at 3 months of age.
This has since developed into a condition called Lennox Gastaut Syndrome (LGS). LGS is a rare and extremely severe form of epilepsy with multiple seizure types. It causes severe global developmental delay.
I can have 100’s of different seizures every day and my condition is resistant to any medication or therapies which have been tried.
I am severely disabled and unable to do anything for myself. I rely on my Mummy and Daddy for all my personal care needs. I require 24hr care on a daily basis and Mummy and Daddy have had to give up work to look after me!
I would love to able to access my
back garden at home, but I am not able to as our garden path is too small for
my wheelchair, and we have no ramp!
I absolutely love any sort of sensory
equipment, and I would love to be able to turn my back garden into a sensory
garden with a water feature, wind chimes, light and sound arch, musical
chimes, mirrors, raised scented flower beds, special sensory outdoor
mood lighting around my garden.
This
would enable me to access our garden and be pushed around in my wheelchair, as
at the moment I can't go into our garden at all, and I am isolated with either
Mummy or Daddy inside our house, while my sister and brother play outside!
To be able to access my garden would be absolutely
wonderful.
It
would enable me to spend quality time in our garden with my family, something I
am unable to do at present.
I really hope you are able to help contribute to my
dream of a Wheelchair Accessible/Sensory
Garden at home.
Love
Lewis x