In 2015 my Dad was diagnosed with Progressive Supranuclear Palsy (PSP), a rare and debilitating disease without a cure or even any real treatment. All I knew at the time was that I had limited time with my Dad. Over the next 4 years I would become intimately aware of what exactly PSP was as I watched this terrible disease slowly strip away everything my Dad was.

The PSPA offered invaluable help, support and advice and helped us navigate a path to helping my Dad enjoy his later years as best he could. 

During his illness, my Dad took part in as many studies, tests and trials as he possibly could, he knew they wouldn't help him but he said he wanted to help people in the future not suffer as much as he did with PSP. Raising money for research, help and support is as much as I can do to honour his last wish of helping to find a cure for PSP.

Dad lost his fight against PSP on August 28th 2019.

PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We aim to improve the lives of everyone affected by PSP and CBD. We rely entirely on voluntary donations, and that's why we need your support.