Robert Van Brugge

Team Bernstein page

Fundraising for Action for A-T
US$7,500
raised of US$15,000 target
Donations cannot currently be made to this page
Event: London Marathon 2018, on 22 April 2018
Participants: Mark Cox & Daniel Gordon
Action for A-T

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RCN 1145303
We fund medical research to find a cure for the rare disease A-T

Story

Mark, Daniel and myself will be taking on the 2018 Virgin London Marathon to raise much needed funds and awareness for Action for A-T.

Action for A-T was established in 2012 by parents whose daughter Evie  (pictured above) was diagnosed with a rare neurological condition named Ataxia Telangiectasia (A-T).  

The charity’s mission is simple, they aim to speed up the process of identifying a cure for A-T or treatments that delay or prevent the disabling effects of this devastating childhood condition. They do this by seeking and funding high quality peer-reviewed medical research both in the UK and around the world.   

Further investment into A-T research is urgently required as there is currently no treatment or cure for the condition. 1 in 3 children with A-T will develop cancer or respiratory disorders at some stage in their short lives and more than half will not live beyond their teens. Despite these statistics, just 5% (less than £10 per child) of the UK’s annual research spend is committed to paediatric research. As a result, innovative and life changing research is going underfunded.

Please help us to make a difference for the children with A-T like Evie by making a donation. Your gift will help Action for A-T in their quest to find a cure or therapy for this brutal childhood condition and keep us motivated as we train in the cold winter months. 

Thank you.

Robert

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About the charity

Action for A-T

Verified by JustGiving

RCN 1145303
Action for A-T raises money for medical research to find a cure or medical advancement that will enable children who suffer with Ataxia Telangiectasia (A-T) to live a longer and healthier life. Please visit our website at https://actionforAT.org for more information.

Donation summary

Total raised
US$7,500.00
Online donations
US$7,500.00
Offline donations
US$0.00

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