Story
Mark, Daniel and myself will be taking on the 2018 Virgin London Marathon to raise much needed funds and awareness for Action for A-T.
Action for A-T was established in 2012 by parents whose daughter Evie (pictured above) was diagnosed with a rare neurological condition named Ataxia Telangiectasia (A-T).
The charity’s mission is simple, they aim to speed up the process of identifying a cure for A-T or treatments that delay or prevent the disabling effects of this devastating childhood condition. They do this by seeking and funding high quality peer-reviewed medical research both in the UK and around the world.
Further investment into A-T research is urgently required as there is currently no treatment or cure for the condition. 1 in 3 children with A-T will develop cancer or respiratory disorders at some stage in their short lives and more than half will not live beyond their teens. Despite these statistics, just 5% (less than £10 per child) of the UK’s annual research spend is committed to paediatric research. As a result, innovative and life changing research is going underfunded.
Please help us to make a difference for the children with A-T like Evie by making a donation. Your gift will help Action for A-T in their quest to find a cure or therapy for this brutal childhood condition and keep us motivated as we train in the cold winter months.
Thank you.
Robert
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.