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Having witnessed PSP first hand with my mum currently progressing through the late stages of PSP it is important that awareness of this disease is increased to ensure those suffering and their families receive the correct diagnosis, care and support.
I have decided to to take positive action in what is a challenging time for all of my family to take on this challenge to raise awareness and funds for research and support for PSPA.
PSPA is a national charity dedicated to funding medical research and providing vital help and support to people living with rare neurological conditions caused by the premature loss of nerve cells in certain parts of the brain called Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). With a dedicated helpline, 45 volunteer-led support groups, and the very latest literature and how to guides we also support carers and families of people who have these conditions. We are the only national charity focusing on PSP & CBD. Our vision is to improve the lives of everyone affected by PSP & CBD, while funding research to seek a cure.
I intend to drive from John o’ Groats to Land’s End in a vintage landrover which is currently being restored in an epic shake down rather than a quick run in round the block.
I am looking to advertise for business sponsors along the journey in return for donations alongside highlighting the symptoms of the disease on my travels. Any donations will be very appreciated however small.
Updates will be provided as the plans progress.