philip pearson

Philip's LeJog Charity Ride page MPS

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£6,439
raised of £4,250 target
Donations cannot currently be made to this page
LeJog Charity Ride, 1 July 2019
Participants: Andrew Jack and Adrian Smith
The Society For Mucopolysaccharide Diseases (The MPS Society)

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RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of rare conditions.

Story

Thanks for visiting our team's fundraising page. My son, Archie Pearson (he's the one with the cheeky laugh!) suffers from a currently incurable illness - MPS6. It's an genetic illness that causes progressive degradation of core bodily functions. However, with the support of the MPS society, Archie recieves weekly Enzyme Replacement Therapy (ERT) which helps slow down the disease. I've joined forces with two great friends - Andrew Jack and Adrian Smith to cycle from Lands End to John O'Groats over 9 days to raise money for both MPS Charity and Make a Wish. My preference is that the majority of the money raised goes through to the MPS Charity, but I'd be equally delighted if you wish to make a donation to Make A Wish - a charity dedicated to making the lives of poorly children much more bearable.

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About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Donation summary

Total raised
£6,438.28
+ £1,385.00 Gift Aid
Online donations
£6,438.28
Offline donations
£0.00

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