This little legend in the picture is my nephew Thomas, and he is the reason why I am riding from Essex to Brighton on Sunday 18th June.

Thomas was diagnosed with neurofibromatosis also known as NF1.

There is a massive lack of awareness for NF1 and because of this,there is little support for families and people affected.

Thomas is the most determined, fearless and joyful boy to be around and a true credit to his parents! 

Their journey has been far from easy, with endless speed bumps along the road- but please know your family and friends are walking right behind you 💪.

If I can spread awareness and raise a small amount of money to go towards funding further research into this condition  then I will be chuffed.

Any donations big or small welcome.