Story
On the 11th September 2022 I’ve decided to take part in the Great North Run (half marathon) to help raise money for this charity close to my Heart.
Smith Magenis Syndrome Foundation Uk
My youngest Son Reign was born with the disability which is challenging every day.
Smith magenis syndrome is estimated to be found 1 in 25,000 people but only 300 individuals identified in the U.K so far. It is a complex disability and each individual will exhibit different aspects of the characteristics and so each family will develop their own ‘coping’ strategies.
So I have decided to support the foundation in their mission to give everyone with Smith Magenis Syndrome the chance of fulfilling a brighter future.