Reef is our super star! Behind every milestone there are hours and hours of hard work and therapy along with endless sleepless nights and appointments. We are in awe of Reef’s patience, resilience and how much love he has to give.
He is teaching us so more than we knew there was to learn.

In support of Reef, Jess and I will be taking part in Tough Mudder on the 7th May in Henley-on-Thames. It will be hard, we’ll have to dig deep and take on obstacles we don’t want to do but it’s only for 10k. Reef has to work hard and dig deep every day!

If you’d like to support us please donate to fast or even come and cheer us on

Thank you to everyone who is helping us navigate this journey. We are excited to see what the future holds. #cureangelmannow

Angelman Syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Children and adults with Angelman Syndrome typically have balance issues, motor impairment and debilitating seizures. Some individuals never walk. Most do not speak. Disrupted sleep cycles also can be a serious challenge to the individual and caretaker(s). Individuals with Angelman Syndrome require continuous care and are unable to live independently. They have a normal life expectancy. This is life today for people living with Angelman syndrome, but hope is here.

Scientists believe that Angelman Syndrome has the greatest potential for being cured when compared to other neurogenetic disorders, and FAST (Foundation for Angelman Syndrome Therapeutics) has a plan well underway to achieve just that.

FAST UK join our global counterparts in the 2023 Cure Angelman Now (CAN) Campaign in order to raise much needed awareness as well as funds for FAST UK so that we can continue to fund the Natural History Study at Oxford University with a view to facilitate clinical trials in the UK.