Rebecca Decker

Blowing Raspberries to Cavernomas

Fundraising for Cavernoma Alliance UK
£3,255
raised of £1,600 target
Donations cannot currently be made to this page
Event: London 2 Brighton Ultra Challenge 2023, from 27 May 2023 to 28 May 2023
Participants: Ruth Caplan, Gordy, Linda Munster, Paul Decker
Cavernoma Alliance UK

Verified by JustGiving

RCN 1114145
We raise awareness of cavernoma to improve the lives of people affected

Story



We are walking for Cavernoma Alliance UK, a very small charity set up to support and help those with this rare disease. A Cavernoma is a cluster of abnormal blood vessels in the brain. Often, a person can have one and never know it, but on rare occasions they bleed, causing strokes or seizures.

Amy has a Cavernoma, discovered in 2020, and on 15 February, she will have an operation to remove it. She is lucky in that the Cavernoma is operable. Some are not, and some people can have multiple Cavernomas.

It's a frightening time when first diagnosed, and the Cavernoma Alliance UK are a wonderful support for the Cavernoma community. Please give whatever you can to support this incredibly important charity.

You can follow Rebecca's blog at: https://bramyacs.blogspot.com/

With very many thanks.



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About the charity

Cavernoma Alliance UK

Verified by JustGiving

RCN 1114145
Cavernoma Alliance UK (CAUK) supports people affected by cavernoma. A cavernoma is a common but often unheard of condition caused by a cluster of abnormal blood vessels in the brain or spine. Our mission is to improve the quality of life for those affected through education, support and research.

Donation summary

Total raised
£3,254.34
+ £645.00 Gift Aid
Online donations
£3,191.84
Offline donations
£62.50

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