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My partner Lee died last October from hyper trophic heart disease and complications with his medication. Lee also had Dystonia. No matter how ill Lee was he was always there to help anyone and always had a smile and a joke. He is greatly missed by all of us. When Lee and I first met, he was worried that his Dystonia would put me off him, it didnt of cause as Lee's vibrant wonderful personality shone through.

We met through an online dating website, which became a bit of a joke as i'd gone on it for a laugh with a friend, it turned out to be the best thing I'd ever done. Although Lee warned me what would happen on his poorly days it still came as a shock but one I learnt to deal with but what did upset me most, was the times he was admitted to hospital and most of the doctors had no idea what Dystonia was. I had to ring the Dystonia Society and have leaflets sent out just to pass on to the medical staff. I was appalled. 70,000 people in the UK have Dystonia yet hardly anyone has even heard of it. This I think is wrong. The Dystonia Society is the only charity for the UK which provides support and information for people living with Dystonia!

We are doing a sponsored walk on sat 4th September with all money raised going to the Dystonia society and Marlene Reid centre.

Please help us raise more funds, The Dystonia Society was there for us and we want to be there and help them.