Thanks for taking the time to visit our JustGiving page.

Our Raffle is now closed!  We're sorry you missed out but seeing as you're here anyway... Please, please still make a donation! Anything at all will benefit this charity that depends on donations like yours :)

Our mission is…to survive in a harsh, unknown environment like no other.

Our environment is…SNOW and ICE! Finland, the northern most tip of Europe with never ending horizons of forests and lakes and winters of eerie frozen landscapes.

We will learn new skills and survive the extreme cold of the arctic regions while raising money for children living with the painful genetic skin condition EB (epidermolysis bullosa).  We are told it is not for the faint-hearted but the reward we’ll feel at the end of it will be worth it.

The first days are dedicated to learning the skills we need to stay alive in this harsh environment building up to the expedition when we pack our sleds and head off into the wilderness pulling sleeping equipment, food, clothing etc. We will camp overnight in sub-zero temperatures in the Lapland wilds (up to -20 degrees Celcius!)

Accommodation is provided in hostel style rooms. There’s no electricity but there is a fantastic traditional Finnish sauna and log fires to keep us warm (no electricity = no central heating = no running water = no hair washing = Eeeeek!!).  Oh yes, and the bathrooms are outside this little lodge of wonder in aforementioned -20 degrees.

Why are we doing this?  To raise awareness and support those children living with EB and the families that support them.  EB patients live in the harshest environment each hour of each day - their own bodies. 

What is EB?

EB - Epidermolysis Bullosa: A severe rare genetic skin blistering condition

EB - Extraordinary Butterflies:  EB skin is as fragile as the wings of a butterfly

EB - Endless Blistering: Even gentle skin contact causes devastating wounds

EB - Excruciating Bandaging: When dressings stick, the skin often comes away too

EB - Exhausting Battle: There is no cure and a high risk of developing aggressive skin cancer. 

EB = The worst disease you've never heard of

Please help us with this special mission and donate what you can.  Debra Ireland receive less than 2% government funding and need the help and generosity of the public to provide the amazing support, care and research towards finding a cure that is so desperately needed for these children fighting for a normal life every day.

Thank you in advance, and keep an eye on our social media channels for local events we will be hosting over the coming months!

Rebecca & Michelle