Help us raise funds for Grace & Delilah and their AADC friends!

Arcelia Ramirez is raising money for The AADC Research Trust
US$375
raised of US$500 target
Donations cannot currently be made to this page

Help us raise funds for Grace & Delilah and their AADC friends around the world! · 21 May 2018

Teddy Wears BLUE for AADC Awareness Campaign. 21st - 27th May 2018 - The BIG Wave. Join in & support children suffering a very RARE Brain Disease. Just 1:55,000,000 are diagnosed with AADC deficiency

Story

For the 2nd year we are joining the AADC Research Trust in the week long awareness and fundraising event.

As many of you know our 2 girls have this terrible condition which affects every aspect of their lives. It's not easy for them but they are troopers and they give it their all to make it one day at a time. 

This link is a short explanation of what AADC really is:

https://www.youtube.com/watch?v=7Ub8Mpzy2BA&t=304s

Thanks for taking the time to visit my JustGiving page.

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Por segundo año nos unimos al AADC Research Trust en el evento de sensibilización y recaudación de fondos de una semana.
Como muchos de ustedes saben, nuestras 2 hijas tienen esta terrible condición que afecta todos los aspectos de sus vidas. No es fácil para ellas, pero son fuertes y valientes y se esfuerzan por salir adelante un día a la vez.

Gracias por tomarse el tiempo para visitar mi página JustGiving.
Donar a través de JustGiving es facil, rápido y totalmente seguro. Sus datos están seguros con JustGiving: nunca los venderán ni enviarán correos electrónicos no deseados. Una vez que done, enviarán su dinero directamente a la organización. Por lo tanto, es la manera más eficiente de donar, ahorrando tiempo y reduciendo los costos para la organización benéfica.


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About the campaign

Teddy Wears BLUE for AADC Awareness Campaign. 21st - 27th May 2018 - The BIG Wave. Join in & support children suffering a very RARE Brain Disease. Just 1:55,000,000 are diagnosed with AADC deficiency

About the charity

The AADC Research Trust

Verified by JustGiving

RCN 1114367
AADC deficiency is a rare disabling brain disease. More than 100 children in 30 countries have been identified with the disease. It's proved fatal for some of them. The AADC Research Trust is a children's charity funding research, supporting affected families and promoting global disease awareness.

Donation summary

Total
US$375.00
Online
US$375.00
Offline
US$0.00

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