Story
Thanks for taking the time to visit our JustGiving page. Your support means so much to us and will help make jumping out of a plane feel more worthwhile!!!
CMN affects my nephew and the charity have supported him and his family right from day 1 with advice, family days and guidance.
The Caring Matters Now support group was initially set up in 1998 by Jodi Unsworth, at the time a 17 year old patient at Great Ormond Street Hospital with extensive CMN. Jodi and her parents provided support to those similarly affected by the condition. This was the first known and only dedicated support group in the UK. It was clear that those with CMN and their families were in desperate need of accurate information, advice and contact with others affected by the same disorder.
Today, the CMN support group has over 300 families registered and 11 UK regional support contacts in operation. A small team of those with CMN and parents of children with CMN run the support group which is now a registered charity with the UK Charity Commissions. The charity primarily covers those living in the UK but is also happy to provide support and information to families living internationally. Individuals and/or families only need to register on-line to be on the distribution list for newsletters and to be put in touch with a support contact.
CMN are the only dedicated UK charity to provide information and support for those affected by Congenital Melanocytic Naevi.
Our aims:
- Support those affected by CMN
- Raise awareness about CMN
- Raise funds for CMN research
What is a CMN?
A congenital melanocytic naevus (or CMN) is a type of birthmark.
Congenital = present at birth
Melanocytic = to do with melanocytes. Melanocytes are cells in everyone’s skin and hair that produce the pigment melanin. This is what which gives us our hair and skin colour. The cells in a CMN look most like melanocytes and they produce pigment, so they are called melanocytic.
Naevus = birthmark (the plural is naevi).
Though CMN means birthmark or mole at birth, in fact, not all of them are present at birth. Around 1% of CMN appear after birth, usually in the first year of life. They look exactly the same as the ones present at birth, but are called CMN “tardive”, which means “late”.
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