Polly Whitmore

Polly & Gina's Page

Fundraising for Reverse Rett
£3,555
raised
Donations cannot currently be made to this page
Event: Bupa Great North Run 2012, on 16 September 2012
Reverse Rett

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RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

On the 16th September Gina an Polly will take part in the Great North Run in Newcastle. They will run this half marathon for Saffy(Saffron Borge) who was diagnosed earlier this year with Retts Syndrome.

"Once, Rett research was focused on diagnosis and prevention but the reversal experiments of 2007 have changed everything. Now, girls and women with Rett Syndrome can afford the possibility of hoping that one day the myriad of symptoms they wrestle daily, will disappear, one by one.

'Like many other people, we expected that giving MECP2 to mice that were already sick would not work. The idea that you could put back an essential component after the damage to the brain is done and recover an apparently normal mouse seemed far-fetched, as nerve cells that developed in the absence of a key component were assumed to be irrevocably damaged. The results are gratifyingly clear, though, and must give hope to those who are affected by this distressing disorder.'

Adrian P. Bird, Ph.D.
University of Edinburgh"

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£3,555.00
+ £40.00 Gift Aid
Online donations
£3,555.00
Offline donations
£0.00

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