Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds for vital home adaptations for a disabled child, to continue to care for their child at home, safely and with dignity.  

Meet Piper she is the happiest of little girls, she was our Christmas eve miracle, surprising us 7weeks prematurely spending her first 3 & half weeks of life in nicu. She suffers from two very rare chromosome disorders, which affect chromosome 2q37.3 and 7q33-36, also she has severe Scoliosis and will have to undergo life threatening surgery in the near future, epilepsy, global developmental delay resulting in her being non verbal for words but she definitely makes you know she’s here and Piper does not walk. As a result of all of these we have been in and out of hospital, lengthy weekly appointments and therapies. 

She is currently the only person on the world database to suffer from the 2 chromosome disorders, so the future for Piper is unknown.

Due to Piper not walking we have to carry her up and down stairs and it is becoming too dangerous the bigger she is getting. We are lucky that our local authorities can provide a DFG to help with the adaptations to our home but sadly it doesn’t cover the complete cost. So we are trying to raise money to help fund a number of adaptions to our home which will make Pipers life a lot easier. 

To make Pipers life safer, easier, promote her independence and dignity we need to adapt our home with a through floor lift that will allow Piper to be able to get up and down the stairs safely in her wheelchair, a wet room for washing, bathing and hygiene needs as we currently have to lift Piper in and out of the bath and on the floor for changing, and extend Pipers bedroom to allow room for a safe bed and the lift. 

We have been given a rough idea of needing 20-25k that we need to fund ourselves on top of the dfg. We would love to make this possible for our little girl to have these things at home so she feels safe, happy and comfortable just like we all should in our homes.