Phil Baines

Phil's International Ataxia Awareness Day sponsored walk

Fundraising for Ataxia UK
£7,591
raised of £6,000 target
Donations cannot currently be made to this page
International Ataxia awareness day, 25 September 2021
Too many people with ataxia struggle to receive a diagnosis. Many medical professionals are unaware of ataxia, so this IAAD we are walking together to our GP surgeries to deliver specialist Guidelines to support them and raise awareness and funds.

Story

I was diagnosed with ATAXIA in 2018, a degenerative neurological condition which effects mobility, speech & fine motor control. 
I had to give up cycling in 2019 and it shaped my thinking about retirement from Central Saint Martins in 2020. 
My condition is deteriorating but I still try to walk around the village every other day to maintain some level of fitness and activity. 
I am aware this condition if very rare and not generally understood or even known about, so to help raise awareness of this condition I am walking from the Offords to Buckden Surgery (2.5m) on Saturday 25 September to deliver an information pack as part of International Ataxia Awareness Day.
Please support me if you can.


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About the campaign

Too many people with ataxia struggle to receive a diagnosis. Many medical professionals are unaware of ataxia, so this IAAD we are walking together to our GP surgeries to deliver specialist Guidelines to support them and raise awareness and funds.

About the charity

Ataxia UK

Verified by JustGiving

RCN 1102391
10,500 people in the UK have ataxia which is a progressive neurological condition that disrupts the messages sent from our brains to our muscles that are used to move, speak, listen and see. Ataxia UK funds research into finding treatments and a cure and provide support until they are found.

Donation summary

Total raised
£7,590.27
+ £1,772.50 Gift Aid
Online donations
£7,590.27
Offline donations
£0.00

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