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Thanks for taking the time to visit my JustGiving page.
I am going to attempt to run the Great North Run and I would like to do it in the memory of A Perfect Little Boy Elliot Granger who sadly passed away on the 4th of February 2012 with Spinal Muscular Atrophy (SMA) Type 1.
Spinal Muscular Atrophy is a devastating, often fatal, muscular wasting condition that affects thousands of people in the UK. 1 in 40 of us carries the gene that causes SMA.
SMA is the leading genetic killer of toddlers and babies, Type 1 is the most common form and is the severest type. Onset typically occurs before 6 months of age. Weakness is severe and manifests in difficulties moving, eating, swallowing and breathing. A child with Type 1 rarely reaches their 2nd birthday. In the UK 6500 babies die every year to SMA.
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Thank you