Petra Agnew

For Elliot, A Perfect Little Boy

Fundraising for The SMA Trust
£990
raised of £300 target
Donations cannot currently be made to this page
In memory of Elliot Granger
The SMA Trust

Verified by JustGiving

RCN 1097765
We fund research into SMA to help find a cure and treatments

Story

Thanks for taking the time to visit my JustGiving page.

I am going to attempt to run the Great North Run and I would like to do it in the memory of A Perfect Little Boy Elliot Granger who sadly passed away on the 4th of February 2012 with Spinal Muscular Atrophy (SMA) Type 1.

Spinal Muscular Atrophy is a devastating, often fatal, muscular wasting condition that affects thousands of people in the UK. 1 in 40 of us carries the gene that causes SMA.

SMA is the leading genetic killer of toddlers and babies, Type 1 is the most common form and is the severest type. Onset typically occurs before 6 months of age. Weakness is severe and manifests in difficulties moving, eating, swallowing and breathing. A child with Type 1 rarely reaches their 2nd birthday. In the UK 6500 babies die every year to SMA.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Thank you

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About the charity

The SMA Trust

Verified by JustGiving

RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Donation summary

Total raised
£990.00
+ £110.25 Gift Aid
Online donations
£541.00
Offline donations
£449.00

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