I will never ever forget the feeling! 

It was last June, I felt like I’d been volleyed across the room
and smashed against the wall behind me. 

“This is MND, there’s nothing else it can be” 

My wife, my best mate, my soul mate, was diagnosed with
MND. 

I knew what that meant - a gradual deterioration to eventually
being unable to walk, talk, and ultimately live! 

I didn’t know the facts though- a third die within a year of
diagnosis and over half within two years!

We gathered ourselves and prepared to fight -  “Ok, what
can we do to treat it then?”

“Well there is ONE tablet you can take. We don’t really know how
it works but it can give you an extra 2 to 3 MONTHS!”

That can’t be right - it’s 2023 and it’s unbelievable how little
is known about MND and how to treat it, never mind cure it!

And that is why I signed up to run the Rob Burrow Marathon- to
support the MNDA in the fight to find a cure and give something back after the
amazing support they have given us. 

Thankfully and luckily, we are in such a positive position now
compared to where we could have been (Cat is planning to do the last couple of miles with us!) but another 6 people in the UK will be having their world turned upside down today, and another 6 will tomorrow. 

I’ve never ran more than 12 miles before training for this.

It’s not going to be easy but nothing can compare to that
feeling last June and it’s that, as well as the thought of some of the wonderful, inspirational people we have met through the MND community that will keep me going to the end!