My niece Ellie is 3 years old and is the most amazing, cheeky, special little girl. In December 2022, Ellie was diagnosed with mitochondrial disease, a genetic condition affecting people of all ages in a wide variety of ways. There are few effective treatments and no cure. We want to change that.

Ellie has an extremely rare variant of mitochondrial disease and so Ellie’s mum and dad are really grateful to have found the Lily Foundation for support. Earlier in 2023, they all attended the Lily Family Weekend where they had the opportunity to meet other families affected by mitochondrial disease as well as meet medical experts and get lots of information about the condition. The Lily Foundation also funds scientific research into mitochondrial diseases in order to try and find effective treatments and cures. The work they do is invaluable to families impacted by this disease.

I am running the London Marathon 2024 to raise funds for the Lily Foundation so that they can continue to put on events such as the Lily Family Weekend, as well as provide lots of other much needed support to those who have mitochondrial disease and their families. Money raised will also fund research into the condition that could help save so many lives.

So please give whatever you are able to this amazing charity, it will mean so much to me and the whole family.

Thank you so much,

Paul