Paul Davis

Paul's Charity Walk for CJD 2012

Fundraising for The CJD Support Network
£370
raised of £300 target
Donations cannot currently be made to this page
In memory of Julian Bailey
The CJD Support Network

Verified by JustGiving

RCN 1097173

Story

Hi,

I'm walking to and from work on Thursday 17th May 2012, which is a distance of 28 miles (14 miles each way) - Croydon to Kings Cross and back.

 

This is the 3rd year I've undertaken this charity walk, having walked into work on Thursday 29th April 2010 raising £500 and Thursday 12th May 2011 raising £400 in the process for the CJD Support Network. I want to build on last year by walking further, so help me better the total this year.

Why I’m Doing it.

The walk is to raise money for the CJD Support Network because of a fellow Bristol Rovers supporter, Julian Bailey, who died of CJD in February 2010. Juilan was an all round great bloke, school teacher, musician and a Rovers supporter for over 50 years. He's in the photo opposite, wearing glasses.

The CJD Support Network is a patient support group providing help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals. 

About the Disease

Creutzfeldt-Jakob Disease (or sometimes known as Jakob-Creutzfeldt Disease) is one of a group of rare brain disorders known as prion diseases which occur both in humans and certain animals. The infectious agent, or prion, attacks the brain, killing cells. Gaps in brain tissue develop, giving the brain a characteristic sponge-like appearance under the microscope.

Prions may exist in the body for many years before symptoms begin, but death may then result within a year. CJD usually attacks people over the age of 55.

Early symptoms of CJD include minor lapses of memory, mood changes and loss of interest. Within weeks an infected person may complain of clumsiness and feeling muddled, become unsteady in walking and may exhibit slow or slurred speech. Eyesight often becomes blurred.

The disease progresses to jerky movements, shakiness and stiffness of limbs, incontinence and the loss of the ability to move or speak. It is likely that the person is no longer aware of their surroundings or disabilities. Eventually the person will need full nursing care.

People affected by CJD usually die within six months of early symptoms, often from pneumonia. In a minority of patients the disease may take two years to run its course. In rare cases, the disease can last for many years.

 

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About the charity

The CJD Support Network

Verified by JustGiving

RCN 1097173
The CJD Support Network offers advice, information and support for patients, carers and professionals involved in any form of suspected or confirmed CJD. We offer emotional and practical support; disseminate new information as research develops and offer advice for those who may be deemed at risk.

Donation summary

Total raised
£370.00
+ £73.75 Gift Aid
Online donations
£370.00
Offline donations
£0.00

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