A disease is RARE when it affects fewer than 1 in 2,000.

Over 6000 rare diseases globally, 72% are genetic and almost 1 out of 5 cancers is rare!

 There are over 300 million people globally living with a Rare Disease and it can take up to 10 years to be correctly diagnosed! Currently over 95% of patients diagnosed with a rare disease have no access to treatment or curative therapies. In our current climate this is just not good enough.

We want to raise awareness and funds to support the great work Genetic Alliance UK are doing to educate, support and help change the landscape for patients & caregivers.

Partners4Access is pledging to take on the UK Three Highest Mountains Challenge in 24 hours! (3 Peaks Challenge). This is considered to be one of most physically challenging adventures and will require determination, grit and a good level of fitness

Challenge details: The National 3 Peaks Challenge takes in the dizzy heights of Ben Nevis (1,344m), Scafell Pike (978m) and Snowdon (1,085m). Over the course of two days, we will trek around 26 miles and ascend to a total height of almost 3,000m

Link: National Three Peaks Challenge: Trek challenge to UK (charitychallenge.com)

Every penny donated will be going to Rare Disease UK to help raise awareness and raise money for this important charity and the great work they do to enable patients to access the treatments they so desperately need! With your donation, Genetic Alliance UK - Rare Disease UK can work to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.

Keep an eye on our LinkedIn and Facebook page's for our training updates and our 'Light Up For Rare' campaign throughout February.

 Thank you for taking the time to visit our JustGiving page. One step at a time, we can help to change the lives of people with rare diseases.

https://www.linkedin.com/company/partners4access/ 

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year and has events held in over 100 countries since 2019!

Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

#wearewalkingforyou