My Name is Owen. I have three rare syndromes - Loeys-Dietz Syndrome, CDK13 Genetic Disorder and I carry the mutation for ANKRD11 KBG Syndrome. I have been a full time wheelchair user since 2017. I am leading a team of disabled people from all over the country, who are taking part in the Superhero Series at home challenge from 23rd July to 20th August. I am then finishing the Challenge by completing the Superhero Series Triathlon at Dorney lake, Windsor on 20th August 2022.

I aim to complete 30K by doing laps of my living room (136 laps = 1K ), and also out in my local community, by self propelling in my wheelchair, for the Virtual Challenge and end with the event in Dorney.

Freedom For Wheels gave me a life changing wheelchair and also funded all my Physiotherapy through the pandemic when I was shielding.

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