Hi all,
I am looking for your support for HHT- any little bit helps. I am participating in the #moveathon this Sat. 12th. #moveforhht

Dad, John McArt, and I have this genetic disorder. Dad suffers greatly with nosebleeds. Personally, this has been a difficult year with HHT as the enormity of the complications this rare disease can have on our bodies have become clearer to me. However, I am lucky to have the HHT Centre of Excellence in the Mercy Hospital, Cork and St.Luke’s and Beaumont Neurology services to help me every step of the way.

Also, I am very grateful to @HHTIreland , and Dara Woods for all of their support and advice.

Thanks,
Orla

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