Jessica Schrum

2021 BBS Walkathon

Fundraising for Marshfield Clinic Health System (MCHS) Foundation
US$2,125
raised of US$2,500 target
Donations cannot currently be made to this page
Event: 2021 BBS Walkathon, from 9 October 2021 to 10 October 2021
Bardet-Biedl syndrome (BBS) is a rare genetic disease affecting every organ system in the body. BBS begins to affect the health of a child before birth and continues to affect daily activities throughout life.

Story

For those of you who may not know of our journey, our oldest son was officially diagnosed with BBS when he was 9 months old. After an agonizing year trying to determine the cause of multiple fetal abnormalities and questioning the quality of life that lay ahead for our newborn baby, we finally had an answer… but not an easy one. It’s a diagnosis we still cope with daily but Nolan is doing phenomenally well and exceeding expectations in just about every way. He is a book-reading, music-loving, bike-riding six year old boy who captures the heart of everyone he meets ❤️

Proceeds from this campaign will go directly to support research at the Marshfield Clinic, the only health system in the US that specializes in the care for patients with BBS. As this disease is so rare, we will likely depend on the Marshfield Clinic in the future and a donation of any size will help make a difference for Nolan and others living with BBS. Thank you for your support!




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About the campaign

Bardet-Biedl syndrome (BBS) is a rare genetic disease affecting every organ system in the body. BBS begins to affect the health of a child before birth and continues to affect daily activities throughout life.

About the charity

As a nonprofit organization, Marshfield Clinic Health System relies on sustaining support from difference-makers like you to fund important patient care, research and education programs. 100% of your gift supports the cause of your choice at MCHS.

Donation summary

Total raised
US$2,125.00
Online donations
US$2,125.00
Offline donations
US$0.00

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