This May I am participating in Dazzle Walk 2022 to raise money for The Ehlers-Danlos Support UK. Join me on Sunday 22nd May at 12noon to strut our stuff along The Esplanade, Sidmouth (meeting at the Lifeboat Station end)! 🦓🦓🦓

Ehlers-Danlos Syndrome is a very poorly understood and relatively unknown condition within the medical profession, and with 13 sub-types currently known, it can be a minefield trying to find a doctor who not only has heard of it but understands that it isn't just about being a bit more flexible. It also has many co-morbidities that add to the challenges it provides day to day. Some also don't believe it's an actual physical condition and so refer you to mental health services and belittle the pain, fatigue and other symptoms you have. Sadly I have been through this myself and it took me 27 years to finally receive my diagnosis of hypermobile Ehlers-Danlos Syndrome last November. This wouldn't have happened without the amazing support from EDS UK and the peer support through their network of volunteers throughout the country. Without having the support of both the paid staff and volunteers, I would never have had access to the information that helped me to look for an appropriate person to assess and confirm the diagnosis, so I want to raise funds to help EDS UK continue supporting others like myself. Please, if you can, sponsor me to do this Dazzle Walk (I'll be on my mobility scooter...!) and help the wonderful people at EDS UK to continue their work!