Story
Hi,
My name is Nigel, and I had the greatest privilege to be Caitlin’s grandad. She was only 13 when this cruel and debilitating disease mitochondrial took her life. Caitlin in her short life gave us so much joy, love and laughter. Unfortunately, we didn’t know what was to come for Caitlin and ourselves. In her later yeas she became the most courageous and strong little girl who fought with all her strength to stay with us for as long as possible. No matter how much she was suffering she always had a smile for everyone. I am cycling 100 miles in the Ride London event and would like to raise some funds for the Lily Foundation, who are there for families of those children who have mitochondrial disease past and present. They are working hard for research into the condition and maybe away in the future a cure. If possible, please go online to the Lily Foundation and see the tremendous work they do to highlight the disease. We are grateful we got as long as 13 years with Caitlin.
Thank you for any donations however big or small.
The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today. Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.