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Williams (and Fillery!) Clan avatar
Williams (and Fillery!) Clan

Amyloidosis Research

Fundraising for Royal Free Charity

71 %
£1,420.00
raised of £2,000 target
by 33 supporters
Donate

Amyloidosis Research Fund

Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

Charity Registration No. 1165672

Story

Nigel was an avid sportsman (hockey, cricket, golf, you name it, he did it!) and all round awesome guy. His moustache was a thing of legend and his personality is incomparable to anyone else we can think of.

Everything Nigel did was for someone else. He predicted, planned and worked out probabilities for everything (and we mean everything!) in his life but no one could be prepared or warned of this outcome. Unfortunately as he finally took a step back to enjoy retirement he was taken from us far too soon. We wish to continue in the way he chose to live, by celebrating his life and donating to research into this very rare genetic disorder to prevent the suffering of others and their families and friends. We don't expect anyone to contribute to this cause however we are very grateful of anything we do receive. This is an incredibly rare condition and therefore is little known with little support so every penny really does matter. If you wish to donate offline, please do contact a member of Nigel's family which can be done through the site. Below is a brief overview of the illness in question if anyone is interested to learn more. 

Amyloidosis is a rare disease caused by damaging build up of abnormal protein fibres, called amyloid, within the tissues and organs. Amyloidosis can affect any part of the body and lead to life threatening organ failure. It causes the death of about one person in every thousand and there are about 6,000 cases in the UK at any time.The Amyloidosis Research Fund within the Royal Free Charity supports the research, development and patients of the UK NHS National Amyloidosis Centre (NAC) at the Royal Free Hospital. The Centre, established in 1999, is funded directly by NHS Specialised Services to provide diagnostic and management advisory services for all UK amyloidosis patients.

Anyone who would like to know more please visit www.ucl.ac.uk/amyloidosis/national-amyloidosis-centre/amyloidosis-overview#top

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