Story
I was born with a genetic condition called Neurofibromatosis (NF1). Neurofibromatosis is a genetic condition where tumours grow on and under your nerves. I have a tumour at the back of my eye and I have to attend frequent hospital appointments and eye appointments. There is no cure for this condition.
So I’m doing this sky dive to raise awareness and to hope that more people become aware of the condition.
Shine A Light on Neurofibromatosis: Raise awareness for Neurofibromatosis by lighting up landmarks and buildings on World Neurofibromatosis Awareness Day - May 17th. Help us raise £ 26.500 for 26.500 people in the UK who have nerve tumours. As of yet there is no cure, but it makes a great difference to a persons life if they are provided with support.