a couple of months and it will be marathon day I got hot down with pleurisy before Christmas but I'm so much much better but behind in training but onwards ans upwards

All about Lillie one of my twin daughters she is 19 months after months of not being listen to and her condition not being picked up from birth I fought to get her a refferal to be seen by an eye doctor well finally at 9 months old she got diagnosed with bilateral ( means both eyes ) coloboma of the iris and retinas 1 in 10,000 has this and not long ago ...diagnosed with optic nerve coloboma in the left eye 1 in 200,000 has this these statistics are from the us as there are not actual statistics from the UK to go on but Lillie is my one in a million .This means she barely if any sight in her left eye and no central vision in her right eye she also needs glasses to correct her long/short sightedness. Lillie has many issues that run along side the coloboma she has adjusted to everyday life all ...by herself such a little super star. So I decided to apply to run for the action for blind ppl in conjunction with the rnib in the London marathon of next yr I found out a week earlier than normally as I phoned them them and my application has been sucessful so now the hard part is the training and getting fit and getting sponsers any sponsership will be great even if its a quid every little helps :-) and if you can't spare a quid can you share my story via your Twitters and facebook accounts and also my just giving page many.thanks I'm running for the action for blind ppl in conjunction with the rnib for the following reasons being my daughters is an inspirational little girl and if see can do day to day things without complaining I should run this race on behalf of her to raise money and awareness Thanks for taking the time to visit my JustGiving page.

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