Nick Harvey-Bain

Life for Lewis Appeal

Fundraising for Tree of Hope
£860
raised of £500 target
Donations cannot currently be made to this page
Event: Lewis Herbert 2 Appeal, on 30 November 2020
Lewis Herbert 2 Appeal, 30 November 2020
Tree of Hope

Verified by JustGiving

RCN 1149254 In Scotland SC042611
We offer hope to families to transform the lives of sick children

Story

Thanks for taking the time to visit my JustGiving page.

I am running the Silverstone Half Marathon on the 12th March 2017 to raise funds for Lewis Herbert.  Lewis was born in November 2002. He was diagnosed with West Syndrome at 3 months of age.This has since developed into a condition called Lennox Gastaut Syndrome (LGS). LGS is a rare and extremely severe form of epilepsy with multiple seizure types. It causes severe global developmental delay. He can have 100’s of different seizures every day and his condition is resistant to any medication or therapies which have been tried. He is severely disabled and unable to do anything for himself. 

I'm helping to raise funds for Lewis for a deposit for a suitable wheelchair accessible Motability vehicle which will be fully adapted and converted to Lewis' complex needs.  Any funds raised will also help towards an Eye gaze communication system for Lewis to use at home. This would enable him to activate sensory cause and effect software using his eyes, with the long term aim of him being able to communicate basic words and his needs by selecting symbols with his eyes on the screen.

By donating to this cause you have the chance to make a real difference for Lewis and his family, and anything you donate would be really appreciated.

Thanks

Nick

Share this story

Help Nick Harvey-Bain

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Tree of Hope

Verified by JustGiving

RCN 1149254 In Scotland SC042611
All donations are paid into Tree of Hope's general funds which fund our charitable activities. Our charitable activities are focused on raising & managing funds for medical treatment, therapy & equipment for sick & disabled children. England & Wales 1149254 Scotland SCO4261 www.treeofhope.org.uk

Donation summary

Total raised
£859.56
+ £172.50 Gift Aid
Online donations
£859.56
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.