A year ago our lives changed when our youngest son Oscar was diagnosed with Smith-Magenis syndrome. 

Many people, including lots of medical professionals have not heard of the condition demonstrating how rare and relatively unknown the condition is. 

The Smith-Magenis Syndrome (SMS) Foundation aims to ensure every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.The Smith-Magenis Syndrome (SMS) Foundation UK is at the heart of our community. They are the first point of contact for those seeking information and support. 

Nobody should ever feel isolated or alone. We value every person affected by this genetic disorder and shall empower them to reach their full potential as respected members of society.Connecting Families – Raising Awareness – Building Futures

Having never run further than 10km, a half marathon will more than double my longest distance run