Nick's page

Nick Biddle is raising money for Action for M.E.
£3,720
raised of £1,500 target by
Donations cannot currently be made to this page

London Marathon 2018 · 22 April 2018 ·

Our vision is a world without M.E. and it's our supporters who will help us get there. Join team Action for M.E. for the London Marathon 2018 and you'll be helping us stop M.E. stealing lives.

Story

Thanks for taking the time to visit my JustGiving page.

As you may know our son Bud suffers with CFS/M.E. (which is chronic fatigue syndrome/Myalgic Encephalomyelitis) if you're unfamiliar with the condition here’s a link: https://www.actionforme.org.uk/what-is-me/introduction/. He spent over three years seeing doctors, paediatricians and psychologists who “couldn’t find anything wrong with him” so deemed him to be “well” which he clearly wasn’t.  He, school, the medical profession and we continued to push for him to continue trying to do what he couldn't.  This not only made him physically worse, it also started to affect his will to live.  His increasing symptoms of anxiety and depression were also misdiagnosed as potentially the source of his illness.  

After much searching Sharon, Bud's Mum and my partner, contacted Action for M.E.  Their advice, help, support, warmth and kindness have been the light at the end of a very long and very dark tunnel.  Following their advice we requested a referral to UCHL who have a unit specialising in, among other things, children with chronic fatigue/M.E.  They were able to diagnose his condition and we now have every reason to believe that we have a path to recovery and althogh Bud's physical condition remains very poor he is being supported and is regaining the bright and positive outlook that we had been watching slowly fade in him.

As well as providing help, advice and support for suffers and their families, Action for M.E. encourages research and promotes public understanding so that sufferers’ conditions may be better understood by the wider community.

It means a lot to me to be able to give them something back. Action for M.E. have been a lifeline for us, and your donation will help them continue this great work.

THANK YOU!

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About the campaign

Our vision is a world without M.E. and it's our supporters who will help us get there. Join team Action for M.E. for the London Marathon 2018 and you'll be helping us stop M.E. stealing lives.

About the charity

Action for M.E.

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RCN 1036419
Our mission is improve the lives of all people affected by ME. Working towards a future where everyone with ME receives the understanding, equity and care they deserve. We provide practical support and healthcare services, as well as funding breakthrough research and campaigning for change.

Donation summary

Total
£3,720.00
+ £768.00 Gift Aid
Online
£3,563.00
Offline
£157.00

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