Niamh Buckingham

I'm fundraising for Addison's Disease Self-Help Group

Fundraising for Addison's Disease Self-Help Group
£495
raised of £250 target
Event: Hackney Half 2023, on 21 May 2023
We support people living with Addison's to improve their quality of life

Story

Addison’s is a condition where the adrenal glands do not produce enough steroid hormones. It affects 1 in 10,000 people, meaning it is a very rare disease. 

Although Addison’s is a lifelong condition, symptoms can be controlled with replacement hormones. But those living with the condition need to take steroid medication several times a day to stay healthy and are also at risk of having a life-threatening adrenal crisis.

Managing Addison's is challenging and life-changing and there is not enough medical understanding, clinical research or support for patients.

My best friend Cat has the condition and I have seen how it can impact everything, from having low energy day to day, to developing secondary health conditions such as Type 1 Diabetes which require extra treatment, to affecting emotional wellbeing.

The Addison's Disease Self-Help Group supports the community by providing practical support to those affected, as well as working to promote understanding among HCPs and campaigning for better patient outcomes and experience.

I am so proud of Cat for how she has taken it all in her stride but I know how much she would value more awareness of Addison's and more support.

As a very small charity, every pound raised for ADSHG really does make a difference!

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About the charity

Founded in 1984, we're the UK and Ireland charity for all affected by Addison's disease and adrenal insufficiency. We work to support and promote better medical understanding of this rare, life-threatening condition. All donations go to our 'unrestricted' funds, to help us in this vital work.

Donation summary

Total raised
£495.00
+ £93.75 Gift Aid
Online donations
£495.00
Offline donations
£0.00

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