nia jones

Teulu Celyn yn dringo'r Wyddfa 2021

Fundraising for Dravet Syndrome UK
£2,164
raised of £250 target
Donations cannot currently be made to this page
Event: Climb Snowdon 2021 - 11th September, on 11 September 2021
Climbing Snowdon is a fantastic challenge and will be a memorable day for all. Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education, awareness and support.

Story

Mae Nain, Taid, Mamgu, a'r criw yn dringo'r Wyddfa i godi arian i Dravet Uk, yr elusen sy'n helpu Celyn.

Ar hyn o bryd mae Celyn yn dod yn ei blaen yn arbennig. Mae hi'n mynd i'r ysgol feithrin, yn nofio, yn mynd i ffysio, therapi siarad, therapi chwarae, ac yn cael amser bendigedig dwywaith yr wythnos mewn canolfan i bobl ar anghenion ychwanegol. 

Mae Celyn wedi trio cyfuniadau gwahanol o dros ddwsin o feddyginiaethau yn ogystal a'r deiet Keto, ond mae hi'n parhau i gael ffitiau. 

Y cam nesaf i Celyn yw therapi genynnau. 

Mae Dravet UK yn cydweithio ag ymchwilwyr arloesol megis Stoke Therapeutics ac Epygenix sydd ar flaen y gad yn y maes technoleg gennynnau a dyn ni'n obeithol iawn y bydd hyn yn opsiwn i Celyn yn y dyfodol agos.

Noddwch y teulu i roi hwb iddyn nhw i gyrraedd copa'r Wyddfa. Gobeithio bydd y caffi ar agor!




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About the campaign

Climbing Snowdon is a fantastic challenge and will be a memorable day for all. Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education, awareness and support.

About the charity

Dravet Syndrome UK

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Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Donation summary

Total raised
£2,163.77
+ £335.00 Gift Aid
Online donations
£2,163.77
Offline donations
£0.00

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