Story
The GDNF UNIFYING Challenge
Keeping the hope alive for People with Parkinson’s
Imagine that you had risked your life and been treated with
a new protein via catheters installed in your brain, to cure a chronic
condition. The treatment was effective, improving
your quality of life; and then it was taken away and declared a failure by the
researchers, scientific community and sponsoring organisations.
That’s what happened four years ago to 42 participants in
the Bristol *GDNF clinical trial, when all directly involved in the trial could
see the improvements (as shown in the award winning BBC2 documentary ‘Parkinson’s,
the miracle cure?’) and all believed in its success. However, the technical
results showed the trial to be a failure and treatment was stopped.
Since then, the Participants have continued to campaign for
the return of GDNF and further trials. We, with the help of our friends, have
managed to turn the heads of the scientific community from ‘no chance’ to, ‘shows
promise’. We have influenced the Parkinson’s UK charity to be proactive in
seeking a way to look again at the trial and find another way.
The Participants have issued a Challenge not only to raise
funds for research and to bring the community together, but raise public
awareness of the fastest growing neurological condition and the need to review
neurotrophic factors, such as GDNF, as a game changer.
Face2Face Parkinson’s
Community Interest Company, are delighted to be supporting the
Neurotrophic Ninjas in the GDNF Participants Unifying Challenge this April
1-10. Make a donation and sign our on-line petition; look for Neurotrophic
Ninjas at www.gdnf.org.uk
We are asking for you to donate to the work of GDNF for Parkinson's, please and allow the continued support of research to help with vital work being done to develop a life changing medication.