The Lily Foundation provide incredible support to children and the families of children who are affected by Mitochondrial disease. 

My friends Iain and Angela have a lovely boy called James. James was diagnosed with Leighs (A type of Mitochondrial disease) at the age of 4. James led a perfectly regular life until he was diagnosed, he could walk and talk like any other 4 year old boy and enjoyed running about and enjoying all the things that kids do. Unfortunately the symptoms of Mitochondrial disease are progressive and in a few short years James now uses a wheelchair to get about and faces daily challenges. Despite the obvious challenges that Iain, Ang and James face, they are determined to fight and make the very best of what they have which is hugely inspiring to many many people. Read some more about James' story here - www.thelilyfoundation.org.uk/your-stories/james-warwick-dodd/ 

Watch this 2018 video by The Lily Foundation (you may recognize someone at 2m 35s) :-) - https://www.youtube.com/watch?v=qGjWuPKTIX0

Unfortunately Mitochondrial Disease is currently incurable and Iain and Ang have to live with the prospect of every parents nightmare.

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting. 

So what am I doing? Well I have already completed the London Marathon back in April this year and I am also taking part in Ride London (100 Mile bike ride) on 29th July. On top of these 2, if I also complete a 2 mile open water swim in the Serpentine (Hyde Park) on 22nd September, then I will have completed all of the 'London Classics' in one year, which will qualify me for entry into the hall of fame! An exclusive club with only 569 members so far. Can I be the 570th??

Please give what you can, stand with us and fight Mitochondrial Disease and fight for hope.