Story
Thanks for taking the time to visit my JustGiving page.
I guess you wouldn't be reading this page if you weren't interested in what I am doing, so please take 2 minutes to read about my challenge and follow the link to The Lily Foundation to read about what they do - www.thelilyfoundation.org.uk
My good friends Iain and Angela have a lovely son called James. James is 7 years old and an inspiration to everyone that knows him. James led a perfectly regular life until he was diagnosed at the age of four with a type of Mitochondrial disease called Leigh's. James could walk and talk like any other 4 year old boy and enjoyed running about and doing all the things kids do. Unfortunately the symptoms of Mitochondrial disease are progressive and in a few short years James now uses a wheelchair to get about and faces daily battles. Despite the obvious challenges that James, Iain and Ang face, they are determined to fight and make the best of what they have which is hugely inspiring to many many people. Read some more about James' story here - www.thelilyfoundation.org.uk/your-stories/james-warwick-dodd/
Unfortunately Mitochondrial disease is currently incurable and Iain and Ang have to live with the prospect of every parents nightmare. 'The Lily Foundation' was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.
I want to try and help in a very small way by raising some vital funds for The Lily Foundation to help them in the amazing work they do. Ultimately a cure is what they are looking for, but while the hunt continues, the funds will be used for research and for supporting families like Iain, Ang and James.
So what am I doing? Well this year I am going to be doing a whole host of physical challenges that will test me to the max. Currently the list of confirmed events totals 27 and is as follows:-
Hell Runner 11 mile obstacle race - Completed
London Winter 10k - Completed
The Nuts Challenge - Completed
The Silverstone Half Marathon - Completed
One True Grit - Completed
Spartan Sprint - Completed
Bubble Rush - Completed
Tough Mudder, London West - Completed
East Grinstead Triathlon - Completed
Olympic Park 10K - Completed
Back 2 The Trenches - Completed
The Suffering Race, Legends event - (5K, 10K and 10 mile obstacle races all in one weekend) - Completed
Hemel 10K - Completed
Muddy Furlong - Completed
Mudnificent 7 - Completed
Bear Grylls Survival Race - Completed
Daventry triathlon - Completed
Spartan Super - Completed
W.A.R. Warrior Adrenaline Race - Completed
Hercules St Albans Triathlon - Completed
Tough Mudder London South - Completed
Spartan Beast - Completed
Royal Parks Half Marathon - Completed
Tough Sh!t - Completed
Great South Run
Trick or Treat Run
Royal Parks 10K - Completed
The 3 Peaks Challenge - Climb the highest mountains in England, Scotland and Wales in 24 hours. Snowden, Ben Nevis and Scafell Pike - Completed
As you can see it is going to be quite a year!! If you can spare a few pound or even just a few pence then please click the donate button and help me beat my target. It will mean so much to so many.
You can donate here or by text - text the code NHNH79 followed by your amount to 70070.
Thanks
Neil xxx
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