Story
Thanks for taking the time to visit my JustGiving page.
Today should have been Tripp Roth's third birthday. Sadly Tripp died 4 months ago from the terrible disease that is EB. He was a very brave little boy and and he was one of hundreds of thousands of babies, children and adults worldwide battling this painful of diseases.
There is NO CURE for EB and the majority of parents who have a baby with EB did not know they both carried the gene until their precious baby was born. Many of these babies will not live to see their first birthday and for those that do, each day is filled with pain due to the constant sores on their skin and throats and eyes. Each nappy change is painful. Each hug is painful. Eating is painful.
It is in Tripp's memory and to raise awareness of EB, that I am taking part in the BUPA 10,000 to fundraise for DEBRA, the amazing charity that supports everyone affected by this cruel disease.
The money you kindly donate will help those currently suffering by providing support for them and their family and also go towards research into finding a cure.
If you have a moment, please take a look at DEBRA's website and also Tripp's mother, Courtney's blog which is a testimony to bravery, love and hope.
I know that there are so many worthy charities to support, but even if you could spare just a few pounds, you would be directly helping some amazing people who really really deserve our help.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
Every penny will help and thank you in advance for your support
Nat x