I am raising money for The AADC Research Trust. This charity was set up by a close family friend in 2006, after her son was diagnosed with Aromatic Amino Acid Decarboxylase Deficiency (AADCd), an extremely rare neurological disorder. Since then the charity has grown, and the whole AADC team have worked tirelessly to raise awareness, support families worldwide to access the assessment and treatment they need, as well as huge fundraising efforts to develop vital scientific research. The work they have done is truly incredible.

I have always said I wanted to run one marathon in my life and raise as much money as possible for AADC in the process. Please read more below about the charity and support us by donating what you can. Thank you! 

The AADC Research Trust is a Charity Organisation dedicated to helping children and their families, around the World, affected by Aromatic Amino Acid Decarboxylase Deficiency (AADCd).

 AADCd is an ultra RARE genetically inherited neurological disorder affecting the brains ability to produce neurotransmitters, dopamine and serotonin. These are two of the most essential neurotransmitters needed for everyday living! Deficiency of these essential neurotransmitters has catastrophic consequences resulting in a life-limiting and life-threatening condition, with multiple disabilities. 

 The disease currently has an incidence of 1:55,000,000 worldwide. There are currently 150 - 200 children, spanning 30 different countries who have been correctly diagnosed with AADC deficiency. It has proved fatal to many of those children.

 With your help The AADC Research Trust will:

•   help support children with AADC

•   promote worldwide disease awareness

•   fund scientific research

Many thanks from all of us at The AADC Research Trust and the AADCd community.  

Charity Registration No: 1114367     http://www.aadcresearch.org