Story
With MND, messages from the motor neurones gradually stop reaching the muscles. This leads the muscles to weaken, stiffen and waste. MND can affect how you walk, talk, eat, drink and breathe. Some people also experience changes to their thinking and behaviour. However, MND affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict.
MND is life-shortening and there is no cure. Although the disease will progress, symptoms can be managed to help achieve the best possible quality of life. There is a 1 in 300 risk of being diagnosed with MND.
Unfortunately, my family has been struck twice by this evil "rare" disease with both my mum, Diana, and my step-mum, Carolyn, both receiving the devastating diagnosis of motor neurone disease. It's heartbreaking to watch two wonderful women be affected by this awful disease and the impact it has on their day-to-day life.
There is not yet enough research into MND and it is unknown as to the cause of it and any type of cure there might be.
My Dad, brother and myself want to do our bit to help raise money and awareness to the MNDA. We are doing this by taking part in the Run 21 challenge where we will run 21 miles between 1 June and 21 June 2022. Our target is to raise £121 each (£363 in total).
We hope there will one day be a cure and to live in a MND free world.
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