Jen Benson

Jen's Great Manchester Run 2015

Fundraising for Reverse Rett
£2,800
raised of £2,000 target
Donations cannot currently be made to this page
Event: Morrisons Great Manchester Run 2015, on 10 May 2015
Participants: Team Reverse Rett
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page.

Those of you who know me will know about our daughter Ellie and our family's devastating loss in 2006.  Ellie died aged 6 of a genetic condition called Rett Syndrome that at the time was considered incurable.  So much has changed in the last 8 years, Reverse Rett fund research into basic science, clinical trials and treatments which will hopefully one day be facilitated right here in the UK.  

This research is making strides in understanding the underlying cause of Rett Syndrome, finding ways to treat symptoms and figuring out how to reverse the condition completely.  We have to believe that one day there can be a cure so that other families don't have to experience what we went through.  Please support this wonderful charity and make a donation, thank you!

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£2,800.00
+ £671.88 Gift Aid
Online donations
£2,800.00
Offline donations
£0.00

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