Story
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Primary Biliary Cholangitis (PBC) formally known as Primary Biliary Cirrhosis is a chronic liver disease that slowly destroys the bile ducts in the liver. PBC is not alcohol or drug related and is not contagious. The cause is still unknown.
It effects woman 10 times more than men.
PBC is usually diagnosed with patients between 35 and 60 years. It is an autoimmune disease.
Those with PBC look extremely healthy, most are 10-30 pounds overweight. The light bronzed pigmentation appears in the advanced stages of the disease and gives the appearance of being a little tanned.
The outward appearance does not tell the story of what is going inside the body, even on the transplant list stage PBC patients look healthy.
PBC advances slowly over a number of years, and there is no cure for PBC.
The end stage of PBC is liver failure. Many signs indicate this such as, increased bilirubin, jaundice, fluid accumulation or ascites, malnutrition, gastrointestinal bleeding, intractable itching, bone fractures and hepatic coma. Transplant is recommended before most of these symptoms occur. Recent studies suggest that 20-25% of those diagnosed with pbc will require a transplant. As with any other chronic illness, support and understanding is very important in helping the PBC patient cope with day to day living.
Even after a transplant an auto-immune disease may still return. This is about highlighting the plight of the PBC foundation and the work they do to help sufferers with this illness….
This event has been organised to support a close family member.
This event will also bring us together in celebrating some great music, with a 12-hour live stream, and at the same time raise some well needed funds for this important charity.