Camilla Simmie

Alastair Simmie's Lands End to John O'Groats

Fundraising for EHE Rare Cancer Charity
£64,352
raised of £75,000 target
Donations cannot currently be made to this page
Alastair Simmie's Lands End to John O'Groats, 20 May 2016
EHE Rare Cancer Charity

Verified by JustGiving

RCN 1162472
We support EHE patients and EHE research to combat and defeat EHE rare cancer

Story

The day before Alastair and my wedding I was diagnosed with an extremely rare (1 in a million) cancer or the lining of the blood vessels, Epithelioid Hemangioendothelioma (EHE for short). There is currently no cure for this disease, traditional chemotherapy and radiotherapy do not work and due to its rarity research attracts no funding, other than that from family and friends of sufferers. Thankfully, I appear to have a slow growing form at the moment but the doctors are unsure as to when this will change.

There are a couple of doctors in the USA, a Dr. Seth Pollack in the Fred Hutchinson Cancer Research Centre and a Dr. Brian Rubin in the Clevland Clinic, who are going to work together looking at immunotherapy at a treatment/ cure. They have already identified that it is successful on similar cancers so there is hope.... To run the initial stage of trials on the cancer I have they require $25,000, not a ridiculous sum when you consider that phamaceutical companies invest millions in research for 'common' cancers each year.
There are number of stages to my fundraising. The first being Iain and Georgina's epic cycle along the Route Des Grand Alps. This is the second stage... 

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About the charity

EHE Rare Cancer Charity

Verified by JustGiving

RCN 1162472
EHERCC supports EHE rare cancer patients, raises funds for critical research, and promotes EHE awareness. We help those with EHE while funding research to understand and ultimately defeat EHE, because people with rare cancers should not feel forgotten. We are determined to ensure they are not.

Donation summary

Total raised
£64,351.73
+ £6,656.75 Gift Aid
Online donations
£64,351.73
Offline donations
£0.00

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