PWS families

Mike Bracken is raising money for Prader-Willi Syndrome Association Uk

Participants: David Bracken

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Simplyhealth Great Birmingham Run 2019 · 13 October 2019 ·

Prader-Willi Syndrome is a rare genetic abnormality causing physical and mental disabilities throughout life. PWSA UK is the only UK organisation dedicated to supporting those with PWS, their families/carers and the professionals involved with them. Please do visit at www.pwsa.co.uk.

Story

I wish to run the Birmingham half marathon on behalf of all Prader Willi Syndrome affected families, and dedicate this race to both my son Nathan born with PWS, and in loving memory of Martyn Newton, the father of William with PWS, Thomas, and wife Sue. 

Martyn touched all our hearts, was a fantastic dad, worked hard, and meant the world to his wife and children, and family. He will be deeply missed by all of us, and without doubt he would love to know that we are raising money for the PWSA (Prader Willi Syndrome Association), a charity close to his heart.

PWS is a serious, lifelong, spectrum disorder, causing insatiable appetite, learning difficulties, weak muscle tone, and left unmanaged, a genetic predisposition to obesity. My heart has gone out to Nathan every day of his life and I want to make him proud.

This race, will mean a lot to me, my son Nathan, and people in connection with the PWSA and Martyn Newton, who will be proud we are working as a team to help raise money for PWSA.

Donation summary

Total
£581.70
+ £116.25 Gift Aid
Online
£581.70
Offline
£0.00

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