Story
Thanks for taking the time to visit our page. Us 3 loons will be taking part in the Spartan Race Challenge, which is a 13-16 KM Race with a 25-29 obstacle course, including fire jumping, climbing under barbed wire, wall climbing, mud crawling, spear throwing, rope climbs, heavy object carries, Herculean Hoist, Tyrolean Traverse, monkey bars, Traversal Wall (similar to a bouldering wall), Hobie Hop (a thick rubber band is placed around the ankles and participants hop through consecutive tires), Slippery Wall (a wall built at an incline, roughly covered in grease), a zig-zag log jump, steep mud climbs (rolling mud), tractor pulls, underwater submerging below walls (dunk walls), Atlas carries, tire flips, stump balances (skipping on stumps across a pond), rope swing, Gladiator Arena & more... Failure to fully complete ANY obstacles results in a 30 Burpee penalty!!!!!!
By doing this we hope to make a difference & raise as much as we can for research & treatment in a rare childhood cancer, Neuroblastoma. Please take time to read Ollie's story below and donate. Every pound counts & for every pound we raise, Symantec our kind employer will match......please help us make our target!
Ollie's Story.......
Ollie was diagnosed with high risk Neuroblastoma in June 2015 at just 11 months.
After weeks of visits to the doctor with Ollie having an ear infection and Ollie being poorly we finally got referred to Paediatrician. It was a relief that someone was finally listening and helping Ollie.
Ollie was sent for chest x-ray and ultra sound. During the ultra sound we asked if everything was ok, the doctor said there is a lump at that point our world came crashing down. A Doctor explained that its most likely that the lump is cancerous and if Ollie blood pressure remained high he would have to go to GOSH in the morning.
6th June.
We arrived at GOSH with mixed emotions, we felt safe Ollie was in good hands but scared we were at such a place. The following two wks consisted of Bone marrow, Biopsy’s, Scans & Canuallas which we found horrendous, we were thank full when Ollie got his double hickman line ( used for bloods & chemo). We waited 10 long days for the diagnosis and were told more devasting news that Ollie had High risk Neuroblastoma stage 4 and needs a year of intense treatment.
13th June
Ollie continued to deteriorate the disease had spread to Ollies bones and around his Jaw ( causing the pulling of his ear) Ollie was in so much pain it was unbearable, he had nerve pulsey which caused one side of his face to drop, he was put on Morphine and Ketamine. Ollie also had black eyes caused from the tumour. Chemotherapy was started immediately, the tumour shrunk but released adrenalin in the body. Ollie was struggling to breathe so was rushed to ITCU. We spent 6 weeks in GOSH then Ollie was finally allowed home between treatments.
July - November
Ollie had been in and out of hospital, he had sepsis from his Hickman line and needed to have a new one put it, he has had a few temperatures from effects of the chemo and needed regular Blood and platelets transfusions. Ollie’s bones didn't respond aswell as we hoped so Ollie had another two rounds of chemo, after more tests Ollie's bones still hasn't respond, it broke our heart the treatment was so tough..
We enjoyed every minute of Ollie being at home for the last 5 weeks. We took Ollie to the zoo, parks & farms he loved the Ducks.
November
Ollie started to be sick so we took him to The local hospital where he was monitored the sickness then turned into seizers that were awful. Ollie had a CT scan that showed the tumour had spread to his brain.To relieve the pressure Ollie was sent for an emergency brain operation to have a stent. This helped for a few days but unfortunately the disease spread so fast that there wasn't anything more the doctors could do.
Ollie was so brave & so happy, he never moaned, so much braver than us adults. He has taught us so much and we are so lucky to have had Ollie in our life's. We are the proudest parents.
More research is needed to help cure this terrible disease. A 100 Children are diagnosed with Neuroblastoma each year.
Ollie had a rare type of Neuroblastoma only 4
Children known in the world.
We would like to raise awareness of the terrible disease and help find a cure as no child should have to go through this.