On 19th February 2020 our lives were changed forever when our beautiful baby Erin sadly died at just 7 months old. Erin was a happy, healthy baby and we had no idea what the cause was. She had all of her checks and vaccinations, attended regular health visits and any concerns we had were put down to her being premature. A year after she died we found out she had a rare type of mitochondrial disease. We had never heard of this before and searched the Internet for information. This is where we found the lily foundation. Once we read about all the amazing research they do into mitochondrial disease, we knew we wanted to raise money and awareness for them. 

Did you know every day in the UK a baby is born who will develop mitochondrial disease? We are taking part in The Great North Run as part of Team Lily. We will be running for every one of them and the 10 million people in the UK who suffer from diseases in which mitochondrial dysfunction is believed to be involved. This disease is debilitating, there is no cure and lives are cut far too short. The Lily Foundation's aim is to one day find a cure for mito. As the UK's leading charity dedicated to fighting mitochondrial disease, their mission is to support people whose lives are affected by the condition, raise awareness and fund research into its prevention, diagnosis and treatment. So please donate of you can and help me to give hope. Thank You