Maxine Foster
Maxine's page
Fundraising for Harrison's Fund
Story
Is it a step too far I am wondering? After my last marathon it was suggested to me that marathons were becoming a little old hat and I possibly needed to up my game and give myself a ‘real’ challenge! 😂😂
Never one to shy away from a challenge and with Austin in mind, I decided to enter my first ever Ultra Marathon, a 2 day event which will see me attempt to run, jog 100km over the South Downs National Park.
An Eastbourne start, up Beachy Head, the magnificent Seven Sisters, and along the South Downs Way, with stunning views over the sea, to a Brighton half-way. Devil’s Dyke, and a few ups & downs lie ahead before historic Arundel comes into view after an amazing 100 km journey.
I am constantly asking myself why but then why wouldn’t I? I want to give Austin and all the other children suffering with Duchenne the chance of a normal life.
Duchenne Muscular Dystrophy is a stinker of a disease. It's the most common fatal genetic disorder to affect children around the world. If you've got it, you can't produce dystrophin, a protein you need to build up your muscles. As a result, every muscle in the body deteriorates. At the moment there is no cure.
The facts about Duchenne are inescapable:
- Duchenne Muscular Dystrophy is 100% fatal
- Most kids with it die in their late teens or early twenties
- Most with it are usually in a wheelchair by the age of 12
- It leads to respiratory failure, heart failure, and other debilitating orthopaedic complications
One in 3,500 boys is born with it, and in the UK 2,500 kids has it at the moment. You can have it, no matter where you are or what your ethnic background is. A third of all cases start in the womb, with no warning before the baby is born. Girls can also get Duchenne with around 1% of Duchenne births.
Harrison’s Fund are working tirelessly to get as much money into the hands of researchers so that they can continue with their work.
If you have got this far and you have a few quid spare, please support me in this Ultra Marathon madness. I hate running 🙈😂
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