Thank you for taking time to visit my JustGiving page. Please take a few minutes of your time to read....  

I will be raising money for Oscars Rainbow. 

Oscar Harry White was born on 30th April 2013. When he was 5 weeks of age he became very ill, his lungs had collapsed and he was diagnosed with Bronchiallitus. When he became well enough to come off the ventilator, Oscars parents kept being told he was quite 'floppy'. Lots of tests were carried out and all came back negative.

Eventually the genetic results were back, Oscar was diagnosed with Spinal Muscular Atrophy Type 1 and that very likely he wouldn't see his first birthday. As you can imagine, Oscars parents had their world turned completely upside down.

Oscar passed away the following week aged only 9weeks & 1 day. He was taken away far too young.

Jason and Rachel decided to start fundraising to help support other families and keep Oscars memory alive. Oscars Rainbow was then set up.

You can read Oscars full story at www.oscarsrainbow.co.uk

Oscars Rainbow also has a Facebook page so please like and share the page. It will help to raise awareness. 

Spinal Muscular Atrophy Type 1 is the most common and the most severe. Symptoms are usually apparent at birth, or during the first few months of life. 

Weakness is severe and manifests itself in difficulties moving, eating, swallowing and breathing. The proximal muscles, or muscles closest to the trunk such as the neck, shoulder and pelvic girdle muscles, are most significantly involved.

SMA Type 1 babies have floppy limbs and tongue fasiculations (flickering). Due to the high risk of serious respiratory problems, most children with this type of SMA die before their first birthday.

I will be competing in probably the toughest event on the planet. TOUGH MUDDER! I would like to raise as much money as possible which will go towards that all important cure. 

Tough mudder is a Team-orientated 12mile obstacle course race designed to test physical strength and mental grit. Only 78% of participant’s successfully complete a tough mudder course. If it wasn’t tough, everyone would do it. It’s the tough that makes it great. I’ve been training hard over the winter months and will be taking full advantage of competing in a few events before the big day.

Tough mudder is challenging, but it’s also about mind over matter. Yes, you need strength and physical stamina to charge up a greased quarter pipe, make it across muddy monkey bars and crawl through mud and barbwire coated tubes and trenches. But you also need mental grit to jump into a freezing ice bath and major teamwork to get up certain obstacles.

Thanks you

xxx