Story
Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. One of those people is one of my oldest and best mates Steve, it's his story that inspired me to run to raise money, but it is money that will also help the lives of all of those 10,000.
For those that don't know, CF affects the lungs and digestive system and can cause chronic infections along with reduced lung function, you probably learned about it in GCSE science (if you were paying attention and not playing with the bunsen burners).
If you met Steve you wouldn't know there was anything different about him, other than the fact he has an unhealthy obsession with Rory McIlroy and he could drink you under the table. I've never once heard the man complain about anything to do with CF, even in times where he has had some difficulties, you won't hear more than a couple of sentences from him before it's brushed off and he moves forward.
Behind the scenes I know there's a lot he has had to deal with, as does his wife Olwen and as have his Mam & Dad & family over the years, but he never misses a beat as a friend. In fact he & his family have got more time for other people than pretty much anyone I know. I genuinely couldn't speak more highly of all of them, especially Ste.
Currently, half of those people with CF will not live past 41, but The CF Trust is fighting for a brighter future. The work already done to improve that over the years is nothing short of fantastic, culminating most recently in the access Steve and many others have had to a new life saving drug Kaftrio. It's complicated stuff, and I wouldn't boast of knowing all about it's impact in detail, but what I do know is that since it's been available Steve has started driving the ball 320 yards, so there's your medical evidence!
So there you go, dig deep folks.
"Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way."